My Little Man

It was a good and tiring trip to see Simon. I was down and back so quick! After being up for all of yesterday, I slept very little last night and took the opportunity to spend a bit of time with Simon throughout the night during his cares. He had one Brady episode last night following a lengthy care session that included changing out his feeding tube used for gavage. He had quite a bit of mucous that has to be pulled from his vent tubing during that session as well. All the procedures overwhelm me and for Simon, it has to be traumatic.

Upon awaking this morning I popped in to find the x-ray technicians taking more chest films. After they were done respiratory therapists came in and checked his vent tubes, settings and his lungs. We then changed his diaper – to which he left me a teeny-tiny Simon-sized present too! We got his temperature and I was able to really look at his incision that has nine micro-sized staples. After we finished with his cares this morning I was able to hold him again. I had my choice of how I wanted to hold him and opted for Kangaroo care or skin to skin contact. It was fantastic to hold Simon to my chest and cradle his tiny body covered lightly with a blanket. He would open his eyes and try to look up at me as he listened to my heart. What an absolutely amazing experience.

Simon’s x-ray results came in today and showed some fluid on his lungs. They have given him Lasix to help purge the excess fluids. He’s sounding a bit better now, according to the nurse. Hopefully Simon’s chest will progressively sound better in the coming days. As of tonight, Simon is weighing in at 1 lb 4.98 ounces or 595 grams. Without the excess fluid his weight is down just a touch.