Quick update

Simon has been placed on a diuretic today to help with the water retention and his fluid intake was decreased from 9mL to 8.5mL/hour.  He’s holding steady on the CPAP at 6.  Tomorrow the doctors are going to check his CRP and determine if they can stop the antibiotics or if they need to continue [...]

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CPAP Free – Soon!

Our littlest man without the CPAP
Simon is nearly three pounds now.  He’s growing and gaining weight by leaps and bounds.  His feedings were increased to 9mL every hour today.  Simon remains on a pressure of 6 and his oxygen levels fluctuate between 30 and 40% on average.
Simon has been fighting a UTI for the last [...]

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Chugging Along

I haven’t been updating daily as there isn’t much to really update on.  Life is moving forward and so is Simon.
Simon had one culture come back positive and they have changed which antibiotics he’s getting to resolve the UTI.  He did well with the blood transfusion and his feedings have been increased to 7.8 mL [...]

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Such a long day.

I have uploaded six new photos to Simon’s album.  Please take a peek at the changes and growth of our little man!
Simon is off the vent, which is taking extra work by his little body.  He dropped three ounces before he began gaining weight back.  He’s had a few Brady (bradyicardia) episodes on occasion, but [...]

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Pictures to come…

I promise!
I’ve been a bit busy working on life and writing.  I have an article coming out in The WAHM Magazine this week and a few more I’m working on for that same magazine.  It’s great to have a direction to take with my writing.  Alas, that does mean that I’m not blogging quite as [...]

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So Far – So Good

Simon was extubated yesterday.  He’s done well with the changes thus far.  His blood pressure is a bit high from the steroids, but all in all, we are thrilled!  Simon’s oxygen levels have been in the low 30’s and stable as can be.  We will know more in a few days as to how he [...]

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When it Rains

It pours – or so the saying goes.
Before I continue, let me just say that Simon is doing really well. Simon is up to 2 pounds, 7 ounces. We are anticipating a big jump in weight tonight with his weigh in as he will be extubated today and placed on the CPAP, breathing [...]

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Weight Gains!

For many, the thought of gaining weight is deplorable.  For Simon, gaining weight is a necessity!  Gaining weight is just what he has done.  We go through the ups and downs of his weight on a daily basis.  Each gram gained is one step closer to working through specific milestones of his life in the [...]

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Together then Not

As a family, we had the incredible opportunity to be with Simon on Wednesday.  The time spent was so incredibly short.  I touched on our experiences previously this week.  What I want to share tonight are the after-effects of our visit.

We’ve experienced quite a bit of regression with Jaden.  A week ago, he was verbalizing [...]

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2-3-18 Set?

Simon.
Charging across the field, Simon weighs in at 2 pounds, 3 ounces, gaining 1 pound since dropping to his lowest weight!  Consuming 6mL of breast milk every hour, the added calories are apparent in the aid of storing fats on Simon’s mighty micro-sized body.  Oxygen in the 40’s assists Simon while the ventilator pushes 18 [...]

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