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Archive for October, 2008

Simon Says

HAPPY HALLOWEEN!

Simon is taking about half of his feedings by mouth and the other half by feeding tube now.  He’s been really good about finishing his bottles for me and enjoys his pacifier.  Simon is up to 4 pounds 15 ounces.

Simon and I had a good time yesterday.  After his mid-afternoon feeding, he decided to [...]

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I’m making a quick blog-by as I’m headed back to Denver today.  I’ll be there for two weeks by myself before Rob and Jaden make their way down.  Rob will be finishing up things in our home during this time.
Simon is doing great!  He’s on low-flow oxygen at 50cc.  He’s up to 4 pounds 10.5 [...]

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Sanity

Not in this household!
There is much stress associated with the NICU journey.  This week was sanity-free and stressful!  Saturday, Rob’s grandmother passed away and he went to Kansas for the funeral, along with his parents, brother, etc.  It was a great trip for them, given the circumstances.  Plenty of laughs and even more food.  The [...]

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I’ve been home since Wednesday.  I’m not headed back to Denver until Sunday or Monday.  I will have a tubal ligation done Wednesday.  I signed the rest of those documents this morning.  Hoorah!  There’s no more babies in our future.  The journey with Simon has reaffirmed that decision.
I’ve spent the greater part of a week [...]

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Simon at three pounds fourteen ounces took his first bottle today!  He did remarkably well and took half of his feeding!!  For preemies, there’s much work that comes with bottle feeding and those 17mL wiped Simon out.  He will now be taking one bottle a shift, working up to full feeds by mouth.
Oxygen is vital [...]

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Simon is off the CPAP!!!!!!!!!!  He was moved to High-Flow oxygen today at 2 liters.  Here’s a picture of his first moments without the mask.

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Quick Notes

Simon is now on a CPAP rate of 4 and tolerating that well.  We’ll see how the next few days go with that and we’ll be back on target with nippling and working towards full feedings.  Simon will also be able to move into an open crib in 7 more ounces while on high flow [...]

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Surgery itself was “text-book perfect”. Simon did have a poor reaction to phentinol though.  It took him a full 24 hours to really begin to snap out of it and finally came off the ventilator yesterday evening.  Simon is back on the CPAP at a rate of six.  He was ready to step down to [...]

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Retinopathy

Simon has Retinopathy of Prematurity (ROP) and will go through surgery today at 1:30 to correct that issue.  He will be placed back on the ventilator for surgery.
What is Retinopathy of Prematurity?
The retina is the inner lining of the eye.  It receives light and turns it into visual messages that are sent to the brain.  [...]

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Have you ever read the story?  In the tale, a long train must be pulled over a high mountain. Various larger engines, treated anthropomorphically, are asked to pull the train; for various reasons they refuse. The request is sent to a small engine, who agrees to try. The engine succeeds in pulling the train over [...]

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