Four Month Appointment

Simon went in for his intake/4mo appointment.  It was a good appointment following a stressful night.  Simon’s hernia reappeared last night, leaving major concern about needing surgery today.  We are going to carefully monitor Simon for signs of pain/distress.  If so, he’ll go into surgery much more quickly than desired.  Otherwise we’ll try to wait [...]

Read Full Post »

Family Outing

We took our first family outing tonight.  As it’s Papa’s birthday, we opted to go there and offer birthday wishes and deliver cards.  It seems that changing from our home tanks to travel oxygen is going to be a pretty easy task.  Loading and unloading to/from the vehicle is a bit more challenging.  I’m finding [...]

Read Full Post »

Snuggles

Dad and Simon had the opportunity to snuggle up today.  I caught a picture to mark the occasion!

Dad wanted to catch a picture this morning of Simon, Jaden and I all sleeping in the same bed.  Of course necessary precautions were adhered, but priceless none-the-less.

Read Full Post »

A Homecoming Challenge

Simon was released from the hospital on Thursday.  What a fabulous and nerve wracking event.  I met with the oxygen company rep who delivered a portable oxygen tank, pulse oximeter and apnea monitor.  In about ten minutes time he had run through each of the machines and assured me that I had four hour battery [...]

Read Full Post »

BIG ANNOUNCEMENT!!!!!!!!!!!!!!

Simon is coming home!!!
He will be discharged tomorrow or Friday!

Read Full Post »

Update on Simon

With the second opinion offered to the medical staff of the NICU, a bit of progress has been seen.  While they are still objecting to a back transfer, they are taking some steps.  Simon will undergo a room air challenge twice a week to see if there is an improvement in the length of time [...]

Read Full Post »

Fighting…

We have had to fight for a second opinion.  It seems that this hospital doesn’t have people question doctors and when a person does, you are threatened with Department of Family Services being called and a temporary custody injunction ordered.  Fortunately, that hasn’t happened yet, but the possibility is there.
We’ve questioned what Dr. Koratkin has [...]

Read Full Post »

What I’ve Learned

It’s been a long week.  I’ve learned a great deal while contending with issues in the hospital, second opinions, teaching facilities and what that means for a parent in the NICU.
Saturday Nov 1, I stayed at Simon’s bedside.  He had such a rough day with his reflux and we were getting nowhere with the medical [...]

Read Full Post »