That’s what doc calls Simon. It always elicits a smile during our extended, sometimes seemingly never-ending appointments.
Today was Simon’s nine-month check-up. His stats are great!
- Weight 17 pounds, 2 ounces (5% for 9 months)
- Length 26 inches (3% for 9 months)
- Head 44 cm (almost 10% for 9 months)
The kid has a big head. We’ll take it!
On the agenda for today’s appointment:
- Feeding issues
- Constipation
- Muscle Weaknesses
- Developmental issues
We were given great commendations for continuing to persevere through Simon’s feeding difficulties. Even with his oral aversions, he’s continued to take in enough calories to continue to gain weight. Simon officially hit the charts at this appointment. There’s major celebrations to be had for that accomplishment in his life.
We have been referred to The Children’s Hospital in Aurora, CO. I’ve called and we have about a two week wait before we’ll even get an appointment. They will go through all aspects of Simon’s eating challenges and developmental issues associated and work out a plan of action while we are there. The typical appointment actually consists of many appointments during the course of a week. It’s very in depth, hopefully giving us the opportunity to keep Simon from needing a feeding tube, though it was discussed today.
Along with challenges in feeding, Simon has had some severe constipation as his fluid levels are below normal. We’ve been given a medication to help with that issue. It will take some trial and error to find the right dosage for him. We were also gives prescriptions for prevacid, zantac and hydrocortizone cream. The first two are for his reflux and the second is aimed to help his skin heal where the tender grips (sticky tabs) go on his face to hold his cannula.
As part of the appointment series at TCH, Simon’s muscle weakness and developmental regression will be evaluated. There is also a physician that travels to Cheyenne from the Denver area that we will be given the opportunity to see in correlation. Until that time, we progress as we have and continue to do all his exercises to his limits.
That’s all for now. Until next time!
Stumble It!
Thoughts and prayers are with you guys. Simon is and continues to be a miracle baby. You continue to prove just how strong you really are as well. If you need anything let me know.
Hi Mysti. Sounds like the fighter in Simon is dukin’ it out.
My prayers and hugs are always with you. 
Hi Mysti and Family,
That is a really great accomplishment. Very well done and so rewarding for all the hard work that you and your family put in. You must be so pleased.
Cheers Stephanie
Hi
we have a preemie too, she’s 4.5 months old. she is still on a cannula. i read that you’re still using the tendergrips. we were unable to use them due to adhesive reactions, and found that just tightening it behind her ears helped a lot. that and we’ve got a homemade harness that helps to cushion her delicate skin.
hope you find help with feeding issues. we’ve had our share as well.
best of luck
rhys