Friday’s Visit with Doc

We were fortunate to see Doc on Friday. We actually had a follow-up to Simon’s ear infection, but took the opportunity to go over some progresses we’ve had with Simon and his feeding difficulties. Doc was quite impressed and even witnessed Simon eating while there. After assessing his weight, the number of [...]

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Spring and Summer

Wyoming springs and summer bring the opportunity to change up a few things in our routines and begin spending more time outside.  We’ve still managed to keep Simon in quite a bit, but have enjoyed a few more walks and quiet evenings enjoying the sunsets.
This season is bringing a few additional changes to our lives.  [...]

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Bionix Controlled-Flow Baby Feeder Day 1

As with Simon’s feeding challenges, we’ve settled into a routine of thickening his feedings.  That began prior to discharge home and has changed, but continued since.
To recap:
Simon spent 14 weeks with a feeding tube of some sort.  He’s had Nasojejunal, Nasogastric and Oral-gastric feeding tubes.  When he began nippling, all went well to start and [...]

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Therapy Continued

Yesterday was a good day for Simon in that Megan came out to visit and brainstorm. While he didn’t eat, we did discuss all the ups and downs, activities tried and worked on finding additional items and activities to try.
Things we’ve tried:

Feeding in his chair
Feeding in his bed
Feeding in our laps
Feeding in our arms
Multiple bottles [...]

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Simon’s Journey

It’s been a long nine months. We’ve had major ups and major downs. Somewhere along the way we’ve been more than blessed to be able to share this with you all.
Thank you for the support, encouragement, love and prayers!

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