Bionix Controlled-Flow Baby Feeder Day 1

As with Simon’s feeding challenges, we’ve settled into a routine of thickening his feedings.  That began prior to discharge home and has changed, but continued since.
To recap:
Simon spent 14 weeks with a feeding tube of some sort.  He’s had Nasojejunal, Nasogastric and Oral-gastric feeding tubes.  When he began nippling, all went well to start and [...]

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Therapy Continued

Yesterday was a good day for Simon in that Megan came out to visit and brainstorm. While he didn’t eat, we did discuss all the ups and downs, activities tried and worked on finding additional items and activities to try.
Things we’ve tried:

Feeding in his chair
Feeding in his bed
Feeding in our laps
Feeding in our arms
Multiple bottles [...]

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“Simon the Pieman!”

That’s what doc calls Simon.  It always elicits a smile during our extended, sometimes seemingly never-ending appointments.
Today was Simon’s nine-month check-up.  His stats are great!

Weight 17 pounds, 2 ounces (5% for 9 months)
Length 26 inches (3% for 9 months)
Head 44 cm (almost 10% for 9 months)

The kid has a big head.  We’ll take it!
On the [...]

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Few Posts, Want More?

It’s become more of a challenge to spend larger amounts of time typing away. Life and Simon’s life have become a bit more difficult than before.
Simon is 9 months old tomorrow. He’ll see the pediatrician on Wednesday. We are:
Coping with projectile vomiting
Fighting during 99% of his feeds
Struggling with movement and activities
The combination [...]

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A few more pictures

We’ve moved!
It took some work, but we managed to get moved and are finally settling into a good routine with the kids.  We’ve had some hiccups along the way, but are definitely working through those too.  It’s wonderful having so much space to breathe.
Simon is almost 8 months old now.  It’s hard to believe we [...]

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Photo Montage

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Simon Update – 7 months old

Hello!
Hard to believe he’s 7 months old tomorrow, isn’t it? What a long and amazing battle fought by such a little guy. It’s certainly paid off though. Simon is still just barely under the charts. He weighs 14 pounds 13.5 ounces and is 24 inches long now. He has been [...]

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It’s been a while!

Simon is growing so quickly these days! He has changed from a newborn into an infant. Simon is cooing, smiling, attempting to roll over and more. There is something new most every day that he does that catches me by surprise and leaves me yearning for more baby time.
Jaden loves [...]

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