The perfect sound when any child is born is the sound of their cry. It holds so much meaning through their first years of life. As a parent, we are able to understand the differences in the cries and find exactly what our child needs through that precious sound. For us, we never were able to experience such a precious moment when Simon was born. Born too soon, Simon was intubated and placed on a ventilator immediately. His first cry for us came through our time here. What a joyous event to hear our son cry with all his might. A sound we will never forget.
Simon still has the PDA or hole in his heart. At this point it is a good thing as he also has pulmonary hypertension and the hole in his heart is keeping the right side from working too hard. As the doctor said, he’s a very a-typical child and this combination is nothing less than that; a-typical. Simon had quite a few Brady episodes yesterday that required stimulation. The little guy is doing everything that he can and we’ll continue to wait and see if he will need to be intubated again. If he does, we don’t see that as a failure or a setback, it will be done to allow his body to rest a bit more before trying the CPAP again.
Last night was amazing in the NICU. We were both able to touch Simon and felt quite free to reach our hands in the little isolette. It was offered for me to change his diaper. I couldn’t resist and jumped to take part in our Champ’s care. Truly a wonderful experience and night, even though the day was quite stressful and challenging.
We will be here with Simon through part of today before having to head back. It is going to be a circus trying to juggle the commuting back and forth. I will be here again on Wednesday, this time, by myself.
Today was fitting for us. We saw him for the first time together, heard him cry together and have begun the processes needed to make this situation the best that it possibly can be.
Stumble It!
One Woman's Heart 