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Posts Tagged ‘SOLID FOODS’

It’s been a long week between colds, ear infections and Simon back on oxygen.  As our long weekend has progressed, today has become a day devoted to good food and much relaxation.

I put Simon to bed last night on his Tucker Sling.  He’s been sleeping on his back to help with some of the congestion issues, but since they started to clear up a bit last night following a miserable nose bleed, I put him on his stomach.  Throughout the night I woke to check his oxygen saturation levels and was pleased to see that at 1/32 L he was maintaining 95%!  Where his saturation levels sit at night is a good indicator of where he’ll be the next day and if he’ll be able to spend time off oxygen.

This morning he got up, took a bottle and quickly went back to sleep for his morning nap.  When he woke, we put him in his high chair and filled the tray with various foods and let him play and eat all at the same time.  He kept pulling at his oxygen, so I took it off and let him have fun.  I grabbed his pulse ox and checked on him while he was without his cannula and found him sitting between 92 and 95%.

When Simon was ready to come out and play, he seemed to thoroughly enjoy being free to meander around without any limitations.  When he began screaming “NI NI” I made him a bottle and tucked him in – with oxygen.  He doesn’t maintain his saturation levels well enough to go without while sleeping yet, but today was definitely a great day for freedom.

The rest of us are playing.  Jaden is running around with friends outside, Rob is playing music and I’ve been playing with words.  What a fabulous way to round off this Labor Day Weekend!

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That would be our world. One moment is filled with much gleam and the next brings disappointment. I most recently discussed Simon’s success with spoon feeding. The joys were short-lived.

Simon has had another ear infection. This is his third in six months. One more in the next couple of months means tubes. We’ll see how this goes. Having tubes, the surgery itself, is simple and short; lasting approximately 5-10 minutes. Anesthesia, however would be the problem. We would probably require a trip to Denver Children’s Hospital as the anesthesiologists here would be leery to work on Simon as he’s oxygen dependent.

Another downfall to this most recent ear infection has been Simon’s regressions in eating. By the time he was given antibiotics, he was back down to taking only 2-3 ounce bottles with each sitting. Spoon feeding was out of the question, though it was offered. He’s finally starting to take 4-5 ounce bottles again. Perhaps solids will kick back up and into his regular routine as the weeks move forward.

Our two goals for Simon for this summer were successfully reintroducing solids and weaning him off oxygen. At his appointment on Tuesday, we discussed both of those goals. Dr. Leland and I are fairly certain that Simon will do okay with solids, though oxygen is a different subject all together.

As of late, Simon has been desaturating during the night. His oxygen requirements have increased, too. We are currently utilizing a few different liters throughout the day. It could be another year before Simon will be truly ready to come off oxygen permanently.

We were quite disappointed to hear the news, but somewhere deep down, I knew that would probably be the case. Simon went from 1/32 of a Liter up to 1/8 and now we are regularly sitting at 1/4L. Any time he gets any kind of bug, it wipes out all of his reserves and we have to start from scratch again.

It’s going to be a long process for Simon. We knew that going into our journey with a preemie, and that hasn’t changed yet. Simon will see Dr. Leland again at the end of the month for his 12 month appointment and follow up.

Can you believe he’s almost a year old? How time does fly.

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As part of our therapy, we have always followed Simon’s cues.  We watch for signs of tiredness, weakness, unhappiness, joy, etc.  Tonight was no different in our time together.

I’ve been putting Simon in his high chair when we eat at the table.  I’ve offered plenty of toys for him to play with and have done everything possible to make that chair a pleasurable experience.  When he’s tired of it, we get him out and hold him in our laps or return him to the floor for more scooting and rolling.

As Simon intently watched the rest of us eat, I opted to get out one of his baby spoons.  It was quite comical watching him interact with that green piece of plastic.  He picked it up and first beat it on the tray.  Before long, Simon began hitting his chin with the spoon.  With a few more minutes of play, (and dropping it down the side of the chair) Simon managed to get the spoon into his mouth.  Carefully I watched Simon’s reaction.  He didn’t gag, he didn’t look shocked and he even began to use his tongue to play with it.

I took the cues he gave and grabbed some squash.  I took a red spoon and touched it to his lips without food first to gauge his reaction.  He was pleased and opened his mouth.  I then just tapped the spoon into the food and let him get a small taste.  Simon wasn’t sure at first, but quickly began moving the food around in his mouth and his eyes perked.  Simon opened his mouth, so I jumped to give him another small taste.  In it went and in it stayed!

Slowly I began increasing the amount of food going into his mouth.  At the end of 30 minutes, Simon had taken 1/4 of the jar!

It’s in following the cues of Simon we know what he needs as an individual.  Success in solid foods was found tonight by watching closely and listening for the silent cues. Now, let’s all join in and shout “Hooray!” and encourage this route to continue!!

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