I’m left in amazement as I think back to where we were one year ago as Simon struggled to survive each day. We didn’t know if we would even be where we are today. Simon is almost 14 months old, actual age and quickly approaching one year, adjusted. He’s definitely mobile, more so than I’d like and his personality is really beginning to shine through.
Aside from crawling so much (offering rug burns on his knees regularly), Simon is also pulling himself up along furniture, in his bed and along the gates that finally had to be installed. Simon is able to tackle the stairs, though I still cringe at the thought! Simon’s vocabulary is coming along nicely too. He is up to NINE words now and babbles even more.
Simon has even had some pretty amazing successes in eating solid foods. Of course he’ll chow down on an Oreo, but also enjoys toast, macaroni and cheese and some pureed foods as well. The thickness of his bottles is slowly decreasing too. Another couple of months and he might transition into a toddler diet. Time will surely tell!
While Simon is thriving and spending most days off oxygen, though still dependent while sleeping, I can’t help but think about another little girl who struggles each day, for different reasons. Darby is about twelve weeks old and had two surgeries last week due to Biliary Atresia.
Cells within the liver secrete a liquid called bile, which is made up of cholesterol, bile salts and waste products, including bilirubin. A network of tubular structures and tiny ducts form the biliary system to drain bile from the liver to the small intestine where it aids in the digestive process. Biliary atresia is the closure or disappearance of the biliary system.
For everyone who has followed Simon’s journey, looking back at the photographs taken shortly after he was born is a reminder of how fragile life is. The following picture of Darby is no different.
As I scan over the picture, I know what each tube and line represents. I also know the struggle that this family is going through at this moment. They, too, live an hour and a half away and have other children to support. The emotional roller coaster is difficult enough without factoring in the needs of your family as a whole.
stitchblade has posted and set up a donation button for Darby on her blog, Not So Average Mama.
God heals because that is His pattern for revealing His nature through His Son. With compassion, Jesus chose to touch the festering sores of the leper (Matthew 8:3). He showed mercy as He touched the crusted lids of blinded eyes (Matthew 9:29). In receiving healing from God, we must earnestly desire to touch Him as well. “People brought all their sick to him and begged him to let the sick just touch the edge of his cloak, and all who touched him were healed” (Matthew 14:35–36).
We know just how powerful prayer is in bringing one child from death to thriving. Join us in prayer for Darby!